Zachary's Story of
Cancer
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Stem Cell Harvest and the Phersis Machine |
Cancer
is never a diagnosis that any one wants to hear, especially a 23 year old young
man. I get the information and I can't
catch a breath, my ears are filled with white noise and my brain is racing, trying to make sense of the information. I look over at my nephew and he seems so
vulnerable and sick. I could not even
imagine the long roller coaster ride we were about to undertake together.
It
started as a tiny little annoying cough.
Zachary would do one of those little coughs like you are trying to clear
your throat. When nothing seemed to
bring relief, I took him to his family doctor.
After Dr. B examined Zachary, he really couldn't find anything
significant and determined that this was one of those OCD habits that Autistics
acquire. We go home and I don't
completely ignore it, but I don't pay as much attention to it as I should.
Winter
came and Zachary seemed to cough more in the cold air and he complained about
coughing when he shoveled the snow. I
thought he was trying to find a way out of shoveling, so I told him to suck it
up and do his job. Zachary has always
needed encouragement to get up and moving and to do his chores, so I didn't
think much about it.
Spring
came and I went out of town for a week to visit my sister and when I got home,
Zachary's appearance shook me. I saw
things that you don't notice when you are with someone day in and day out. He was thin and he was gray. I made an appointment to see Dr. B the very
next day.
Dr.
B was very alarmed. He could not get any
breath sounds on his right lung at all.
He sent him immediately for a chest xray and told me to check back with
him that afternoon. We went directly to
the radiology location 15 minutes away.
When Zachary was putting his shirt back on, the radiology assistant said
that the Radiologist had just read the xray and giving me that special look
that says this is very bad, she advised me to call Dr. B immediately. I got in the car and called Dr. B. Normally you don't get to speak to Dr. B
immediately and I was expecting him to have to call me back, but to my surprise
he came on the phone. He instructed me
to go home and pack a bag for Zachary and go directly to St. Joe's ER, that
Zachary was in serious condition. He had
faxed over his report to the ER and that they would be waiting for us. He also wanted someone to come to his office
and pick up a copy of the information that he faxed just to be on the safe side
because faxed papers can go missing in ER.
At
this point, I go into Mother/CEO/World Leader mode and I start taking
charge. I call Lyle, my husband, and
send him ASAP to pick up the documents at Dr. B's office then he was to come
directly to the hospital ER.
Zachary and I do as instructed and we go directly to St. Joseph's Emergency
Room. As Dr. B said, they take Zachary
back immediately, they have reviewed his xray and Dr. B's notes and they take
him to an exam room straight away. Blood
is drawn. More xrays and CT Scan are
done. Then we are surrounded by Thoracic
Surgeons and Residents. They are
examining him again and again. They
give us the news. Zachary has cancer and
he has a huge mass in his chest. They
move him to ICU and we spend the next seven days there with the doctors putting
him on steroids that helps his breathing.
Once, they have him more stable, they tell us that they are fast
tracking him to Juravinski Cancer
Centre. Zachary get's discharged from
St. Joes and sent home and advised we will hear from Juravinski very soon.
They
weren't kidding. We just got home and
set Zachary's suitcase down and the phone rings. It's is Juravinski Cancer Centre Hematology Clinic calling and
we are to be at their clinic on the 2nd floor in 20 minutes. The lady on the phone advises me that Dr.
Benger is going to be our Hematology Oncologist
. Again, I get Zachary in the car and we
go to meet Dr. Benger. We arrived on the
second floor and as we are entering the Clinic area, a silver haired
grandmotherly lady dressed in a doctor's coat stops us with her hand out and
she announces that she is Dr. Benger and she motioned to a tall lady standing
next to her and introduced us to Wendy, her nurse assistant and Dr. Benger
proclaimed that they are our team that will be working hard with us to get
through this cancer.
Zachary
was diagnosed with Hodgkin's Lymphoma. Hodgkin's lymphoma — formerly known as Hodgkin's disease
— is a cancer of the lymphatic system, which is part of your immune system. Hodgkin's lymphoma is most often diagnosed in
people between the ages of 15 and 30, as well as those older than 55. Males are slightly more likely to develop Hodgkin's lymphoma. Zachary's cancer was diagnosed as Stage
IIB. They explained that Hodgkin's is
one of the cancers that typically is easy to cure.
Zachary underwent a bone marrow biopsy that first visit along
with a lot of blood work and a CT Scan.
I was allowed to stay while the bone marrow biopsy was done and I must
say that Zachary was my hero from that day forward. Perhaps he was too weak to protest, but he
willingly did everything that was asked of him even though he was pretty
exhausted. They did a needle biopsy of
the mass in his chest. He actually
watched that in a mirror and the doctor
joked that he has a morbid curiosity.
After the regular 3
months of chemo they determine he needs another round of chemo. Then he had 2 months of radiation. All during this time he is having CT Scans
and PET Scans and we are getting no cure.
His tumor has shrunk some but it is still quite the mass in his
chest. He still has trouble walking for
any distance without gasping for air and he still has the annoying cough. After
consultation, we find out that
Zachary's cancer is very aggressive and he has a resistance to chemo and
radiation. In the time most patients
need to allow chemo therapy to complete its work, Zachary's cancer keeps growing and repairing itself. To explain it easily, Zachary's tumor builds
a protein that protects the tumor or cancer cells rather than allowing the
chemo and radiation to destroy the tumor or cancer cells.
Dr. Benger consulted with her colleagues and they determined that a
stem cell transplant would be needed, but prior to getting there they wanted to
do some specialized chemo therapy which is much harsher and condensed in hopes
that chemo would kill the cancer cells.
Zachary had a Apheresis Catheter inserted in his chest that would allow
for his own stem cells to be collected for the transplant. He had to go for several chemos at the
Jurasvinski Cancer Hospital Day Oncology Services. Nothing is ever quick in this process. You want to attack the cancer with everything
medicine has but each thing has another side effect and a waiting period. Time drags and drags and drags.
Meantime, Zachary
completes the round of chemo that is like an introductory chemo, then they put
him in the hospital and they do a week of really hard, mean chemo trying to
kill as many of the cancer cells as possible before harvesting his stem cells
for transplant. After this horrible
chemo, we go home and give him shots that build him stem cells very quickly in
his bone marrow, so we will have enough to harvest. The shots make Zachary feel like his has a
bad case of the flu and his bones ache.
Up until this time, he has been a trooper and never complained and we
would get through vomiting and being weak and having brain fog from chemo. But, these shots made his hips and legs hurt
so bad, he could hardly walk. He finally
broke down and cried in pain. It was so
hard for Lyle and me to see him like this, that we broke down and cried with him.
Harvest time - we have to be at the Aphersis lab at 6:30
am. Nothing to eat since the night
before. Once he is hooked up, there is
no walking to the bathroom and you must use a bedside toilet. Believe me, there are dozens of ways to take
away dignity and free will during cancer treatment. They put him in bed and hook him up to the
Aphersis machine using the catheter in his chest. There are two lines coming out of his
chest. His entire blood is removed and
returned three times during this process.
One line is used to remove the blood
from his body to the machine and the stem cells and some platelets are separated
out of the blood and stored in the machine, the rest of the blood is returned
back to his body. We didn't get enough
stem cells the first day so we had to go back for a second day of harvesting.
We went home and waited for our latest Scan and it showed that
we didn't have any improvement but the tumor had not grown, so we would proceed
with the stem cell transplant. We got
the call to be at the hospital on August 15 at 2:00 pm, on Friday. We arrived and they started fluids and anti-nausea
meds via IV. Saturday and Sunday they
did the last and the meanest chemo.
There is no way anyone can prepare you for what happens during the chemo and the stem
cell transplant. I don't care what you
read or hear, it doesn't compare to actually being there. Up until the chemo before, Zachary had not
even lost a hair. Now he doesn't have
any hair and the Saturday chemo drug burns the inside of Zachary's mouth until
it looks like his tongue and the inside of his cheeks have been put through a
grater. He can't talk, eat, drink or
spit. This chemo drug seeps from his
armpits. It burns his armpits, scrotum
and belly crease above his navel. All
those areas literally sloth off all skin to raw meat. It is during this time that Zachary acquires
pneumonia and had to be rushed to ICU for a week. There is vomiting and explosive diarrhea. A real sense of despair and weakness so bad
you must turn all bodily functions over to someone else.
During all this, we had the best medical care bar none world-wide. Dr.
Benger and Wendy, Michelle, Jenn, all our nurses, aides, housekeeping, physical
therapy, home nurses, CAP (Cancer
Assistance Program) have been there for
us. They not only were our professionals, but they treated us like family
|
Nursing Staff Clowning With Zachary
|
and showed genuine care and love for Zachary and
me. They went above and beyond to make
it as easy as possible and to grant every wish.
They allowed Zachary to have visits with his dog, Chase and puppy,
Ellie. We will spend the rest of our
lives finding ways to show our appreciation for them.
We were told that the Stem Cell Transplant has only a 30 - 50
percent success rate. We are waiting for
our next scan to see if we got lucky. It
does feel like a Hail Mary Pass for the win!
If it didn't give us the cure we pray for, we have an experimental drug
to try.
Strange how to start feeling at
this point. At least for me it is. I want to have hope that we got our cure, but
there is a part that makes it hard to hope for fear we will be
disappointed. So suffice it to say,
"I am cautiously optimistic"!
The end of Zachary's Cancer story still remains to be told. I pray it's a story with a happy ending.
|
Zachary got to have a visit with his dog, Chase, while in ICU. |
Dog
People Have Huge Hearts When Called On
During Zachary's treatment, it was getting harder for him to be
happy about anything. Everyone loves to
get greeting cards, so I reached out to the Dog Community and asked that they
send Zachary cards. Man did they ever respond. There hasn't been hardly a day go by since I
asked that there hasn't been a card received and most days its several cards
and maybe a package with a surprise.
Along with cards, Zachary has received, a handmade Wirehair
Dachshund pin
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Zachary having some fun before Transplant. l - r me, Zachary Wendy Reyn and Shelby Lynn. |
from Spain , hand crafted soap that he loved, money, gift cards, a fabulous cape for Super
Zachary to wear that he loves, a hand painted
Zelda cap, a cap from Alaska, a Zelda shirt, a handheld game with a game, Zelda
posters, Japanese Candy and treats and Anime Posters, mustache straws, glow n
the dark Silly Putty, a solar robot dog kit, EB Games gift cards (One I have no
idea who sent it and EB Games would not tell me). Friends of Friends of Friends sent
cards. He has received cards from all
over the world. Friends have sent words
of comfort, support and love on Facebook.
Never will we be able to thank you all enough. But, I want to tell each of you thank you, again. Here is a list of people that
have made Zachary, Lyle and me feel the love during our battle.
The names with a * are members of our dog community.
Lynn Holland Melody
Bagwell Greco
Kandice Kostic * Carolyn
Mills *
Marcello Tulipano* Sybyl
Swan*
Heather Brennan* Lynda
McFadden*
Deborah Bowan Harple Lee
Jolliffe*
Maureen Hepples Maureen
Merkler
Helenne Belanger Sassytails*
Laural Brown*
Rhonda Smith Giannini
* Lois Langille
Sari Hirvonen* Sandy
Alexander*
Dawn Watters* Pat
Blenkey*
Yvonne Howcroft Katheryn
Murray*
Tammy Timpany McAllister* Amanda
McAllister*
Kerrie-Lyn Taylor * Melissa
Doherty
Trina Caird* Emma
Doherty
Ashley Parker Jan
Carpenter*
Heinz Rueetschli* Debbie Hendrix
Chuck Lamers* Nancy Downing*
Summerford Newfoundlands*
Diane Albin* Timothy
Andrews*
Wiebke Kumbhani* Angel
Wagner*
Jayne Stewart* Adri
Lland*
Wendy Reyn* Pat
Ward
Lynn Cope* Gail
Josephine Tutt*
Marian Van Ekelenburg* Katarzyna
Ciupek*
Judy Pruitt Karen
Fasciano*
Josephine Lambert* Nicole
Cooper*
Kathie Ellingson Roth* Aleisa
Colbert Mckinlay
Toni Hoover- Mendenhall* Debby
Krieg*
Susan Wesson Cain* Nuria
Trujillo*
Karen Kuhn Shirley
Ray*
Bob Boxma* Harambee
Kennels*
Gyverscots Karen Prokopetz*
Brenda J Nichols* Tam
Pregent*
Donna Cullen* Amanda
Ferris*
Leslie E. Shelby Savoye* Kay
Reil*
Penny Osborne* Marlene
Ness*
Lisa Maki* Brian
Casey*
Tylor Atkins Shawna
F. Babby
Scott Bell Shelby
Lynne*
Jenny Best* Donna
Tomson Castlekeep IW*
Dianne Miller* Kaileigh
Gonzalez*
Kristi Martin* Trish
Gould
Shawn Nies* Bernadette
Wagner*
Laurie Chemaz Steven
Parker
Sharon Betker* Marsha
Strawn Perry
Yolanda Bowan Pound John
Robson*
Karen Taylor* Lori
Payne*
Carol Ellingson* Katherina Dueck*
Rob Paterson* Gloria
Bracchetti*
Ashley Cawthen Katy
Mason Cargill
Lynn Blackbourn* Lynn
Shannon
Sharleen Weatherley Christa
Wilkin
Catlin Cahill* David
Bryan Swartwood*
D DPhoto Graphy* Heather
Dowell
Kathy Black Lanier Tommy
Cawthen
Beata Lamentowicz* Katherine
Zayas
Brenda Gale* Loren
Bressers*
Patti Adams Pollock Linda
Ploom Metham*
Jenn Fournier-Stooke* Jeffrey Boehne*
Kitty Kalas-Durst* Cindy
Niles*
Dustin Hall Patricia
Romanelli*
Freckashpeng Hounds* Michelle
Atkinson-Fielding*
Nancibeth Koutstaal* Paul Wilson*
Carol Gravestock* Gabriella
Lorincz*
Peggy Michau Marasis* Patricia
Grant*
Mardell Wingo Clanton Anne
Burgess McDougall*
Doreen Calvin* Jean
Tremblay*
Randy & Nancy Rhodes* Lucza
Vertes*
Karen Norton* Michelle
Scott*
Michelle Therrien* Gwen
Giles*
Jane Mangat Steve
Lambert*
Chris Pollen* ExSentia
(Ina Malecka)*
Barbara Heal* Kristen Weatherley
If I left your name off the list, please forgive me. But, let me know. I want to include you in my next blog. You are very important to us.
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Handling Classes in Southern Ontario
Lyle and I regularly attend Monica Park's handling classes. Keeps our dogs sharp and our skills honed. If you are a beginner or experienced, Monica can offer you instruction and insights like none other in the
area.
Drop-in Handling Classes with Monica Park in Milton
Fall session Classes will be held every Tuesday from now until December 16 @ 6:00 PM and 7:00 PM
Winter session Classes will start again Tuesday January 6 until June 23 @ 6:00 PM and 7:00 PM
Boyne Community Centre Milton (Regional Rd. 25 & Britannia Rd.)
Call or text 905-876-6663
E-mail monica.park66@gmail.com
Be sure to go to Canuck Dogs, http://www.canuckdogs.com, to see all the upcoming events and to check stats. You should bookmark it. That's where you will find my blog.
XXXOOO